It's a syndrome defined by sort of a checklist. It's sort of can fit a lot of symptoms from many other diseases so sometimes I wonder about some of the diagnoses. Could be other things, misdiagnosis or chronic fatigue. Can you exercise?
You are very right and I have done a ton of research on this. I am not convinced for sure that it is the issue. I have had extensive workup by my rheumatologist and nothing comes up. I can and do exercise but sometimes it really whipes me out.
I am very tenacious and do not settle, for what the docs say, very easily.